We are seeking participants for the first phase of the Children's Health, Behaviour and Environmental Exposure Study (CHeBEE).
Study recruiting now
We are currently seeking parents of children aged between 14 and 16 years (in Victoria) for the first phase of the Children's Health, Behaviour and Environmental Exposure Study (CHeBEE).
Before you decide whether to participate in the study you will be asked to confirm that you have read and understood the details included in the Project Information Pack for Parents (PDF 1.2MB 18p). The pack also includes the questionnaires, explanations of the Behaviour Assessment System for Children (BASC) and Cognitive Function Testing, as well as the instructions for sample collection.
Details of project participation
You will be asked to fill out a series of online questionnaires about your child's health, behaviour, and food habits. The questionnaires will take approximately 30 minutes to complete. You will not be asked for your name, address or any other personal identifying information. This and other information about privacy is explained in our privacy statement.
Sample collection of child's urine, hair and cheek cells
You will be asked to provide a sample of your child's urine, hair and cheek cells on a specific day. You will then bring these samples to a designated drop off point (such as your child's school) where they will be collected and transported to the laboratory for analysis.
Urine samples will be tested for a range of organophosphate pesticide metabolites as well as glyphosate and other biomarkers of environmental chemical exposure. Hair samples will be analysed for heavy metals and other trace elements. DNA obtained from cheek swabs will be analysed for genetic and epigenetic modifications to selected detoxification and neuroendocrine enzyme pathways.
As the clinical relevance of the results for any individual are uncertain, parents will not be notified of their individual child's results unless specifically requested.
Child cognitive function test
You will be asked to assist your child to complete an online CogState cognitive function test. The test is a brief online computer game consisting of 5 questions that will assess her/his cognitive function. The test/game will take approximately 10 minutes to complete.
Project kit and instructions
If your child is selected for participation in the study you will receive a project kit. These kits will include urine collection equipment, an envelope for collecting hair, a cheek swab and instructions and equipment for sample collection and transport.
Participants will be provided with copies of all necessary documents as well as any equipment and written instructions required for the collection, storage and transportation of samples. All documents and specimens will be coded to protect the participants' identity.
You will also receive instructions for completing the parental questionnaires and assisting your child/ children to complete the cognitive function test.
Reporting of test results
Your child's test results will be analysed to examine the relationships between health, behaviour, age location and environmental exposure. All data provided in this research will remain confidential and the research results will be reported on aggregated data and will not include any identifiable details.
The overall results of this analysis will be communicated through a plain English version of our findings for our participants as well as being disseminated through the usual academic processes of conferences and peer review publications. These results may attract attention of the mainstream media and data will be kept securely at RMIT for 15 years after publication, before being destroyed.
Please note that this research is designed to investigate subtle group effects on a population level, which may be of great importance from a public health perspective, but will not necessarily be of any clinical importance or relevance to individuals. Thus, while you can request to receive your child's results, these results are likely to be difficult to interpret and may not mean anything in a clinical sense for any individual child.
It is anticipated that some environmental toxins will be detected in the vast majority of samples, yet the presence (or absence) of an environmental chemical does not necessarily mean there will be any health effects and requested results will only be reported in a statistical context by identifying each result as falling within a specific percentage of the population using currently available population data.
Results falling in the top 2.5% of the population will be reported as 'elevated' to indicate that there may be exposure above the normal population exposure levels. An 'elevated' result however, does not necessarily indicate potential harm and a 'normal' or 'low' result does not necessarily indicate no harm.
The results of the genetic studies will only examine differences in detoxification and neuroendocrine pathways and will not provide any information relevant to the diagnosis of disease. As these results will only be relevant on a population level, they will not be reported to individuals.
You will be given the opportunity to discuss any results with the researchers and be referred to additional information and resources on possible exposure reduction measures.
As a participant you have the right to:
- withdraw from participation at any time
- have any questions answered at any time.
Participation and consent
Your participation in any study is voluntary. Your consent to use your survey data and sample results is implied by your completion and submission of the surveys and samples.
As part of the screening process prospective participants will be asked for their name, email address, contact phone number, postcode and child/ children’s age. Your personal information will not be shared with anyone else, and will only be used to contact you about the study. You can opt-out at any time.
Management of your personal information
Any personal information you submit to us (e.g.: your name, or email address) is strictly confidential and will never be disclosed to a third party unless it is clearly stated on the form you are submitting or we are required to do so by law. No information will be collected or stored with any details that can be used for identification.
All survey data and test results are strictly confidential and no information will be collected or stored with any details that can be used for identification. Pooled group results will be reported so that individuals cannot be identified.
Website and data security
Users should be aware that the World Wide Web is an insecure public network with the potential risks that a user's transactions are being or may be viewed, intercepted or modified by third parties or that data which the a user downloads may contain computer viruses or other defects.
This project will use external sites to create, collect and analyse data collected in a survey format. These sites are Qualtrix and CogState. If you agree to participate in this project, the responses you provide will be stored on a host server that is used by the researchers.
No personal information will be collected in the survey so none will be stored as data. Once we have completed our data collection and analysis, we will import the data we collect to the RMIT server where it will be stored securely for a period of 15 years. The data on the host server will then be deleted and expunged in accordance with RMIT protocol.
Publication of results
It is expected that the study results will be published on this website and in professional peer-reviewed journals. Results may also be reported in the mainstream media.
Anonymous traffic information
We may collect a limited amount of anonymous information about website traffic so we can improve the content and design of the website to better meet the needs of our visitors. This information will not identify you personally. We may collect information such as the anonymous IP address of each visitor, date and time of access, and web pages visited on an aggregate basis. This information will be used for internal review only.
Changes to this statement
From time to time, we may make changes to this privacy statement. Any changes will be posted on this website. Maintaining your privacy is important to us; if you have any questions or concerns please do not hesitate to contact us.
Register your interest with Fiona Elliott – phone: 0413 944 568 or email: firstname.lastname@example.org.
Please provide your name, email address, contact phone number, postcode and child/children's age. Your personal information will not be shared with anyone else, and will only be used to contact you about relevant projects. To find out more please read the privacy statement.